Welcome New Members
Get started by reading New Members and FAQs pages. Its important that you understand and maintain the objectives of the website expressed by The Mission. Membership assumes your understanding and agreement to the TOU - Terms of Use and any Disclaimers. posted by The Network or any contributors


This website is in the beta phase of development. This collaboration is a work in progress. Initial members are needed to tweek navigation and contribute content before finalizing design. Your blogs, your discussions, your videos, etc. are the content that will grow this website and community. In this beta phase your suggestions are a necessary part of our growth. The process for efficiently collecting and organizing contributions has to be developed. The participation and suggestions of pioneering members will influence the direction of this network. Your membership and participation is greatly appreciated.


Resources

This page is for collecting links to resources. The goal is to eventually build up a collection helpful links categorized by each ACMLS theme: The Disease, The Body, The Mind & The Spirit. All members are welcome to send link suggestions for consideration.

The Disease

American Pain Foundation
Founded in 1997, the American Pain Foundation is an independent nonprofit 501(c)3 organization serving people with pain through information, advocacy, and support. Our mission is to improve the quality of life of people with pain by raising public awareness, providing practical information, promoting research, and advocating to remove barriers and increase access to effective pain management.
APS Foundation of America, Inc
Official website for the nonprofit organization dedicated to Antiphospholipid Antibody Syndrome.
Lupus Foundation of America, Inc.
The Lupus Foundation of America, Inc. (LFA) is the foremost national nonprofit voluntary health organization dedicated to finding the causes of and cure for lupus and providing support, services and hope to all people affected by lupus.
LupusMCTD Foundation
The LupusMCTD Foundation founded in 2005 as a peer-to-peer endeavor run entirely by volunteers -- patients who are dedicated to providing information and support to people interested in Lupus and Mixed Connective Tissue Disorders.
Genome.gov | National Human Genome Research Institute
Home page of the National Human Genome Research Institute, the arm of the U.S. National Institutes of Health dedicated to advancing human health through genetic research
MayoClinic.com
Mayo Clinic offers award-winning medical and health information and tools for healthy livingn
www.hughes-syndrome.org
Hughes Syndrome Foundation is based in St Thomas's hospital, London. This site contains information about the charity and about Hughes Syndrome, also known as the antiphospholipid syndrome, for patients, doctors and supporters.
eMedicine - Medical Reference
The eMedicine point-of-care clinical reference features up-to-date, searchable, peer-reviewed medical articles organized in specialty-focused textbooks, and is continuously updated with practice-changing evidence culled daily from the medical literature.
The Lupus Magazine
Sharing the latest lupus news from around the world - your online lupus magazine & newspaper. New online magazine just launched by our own ACMLS member Geoff!

The Body

MyPyramid Tracker Tutorial
MyPyramid Tracker is an online dietary and physical activity assessment tool that provides information on your diet quality, physical activity status, related nutrition messages, and links to nutrient and physical activity information. The Food Calories/Energy Balance feature automatically calculates your energy balance by subtracting the energy you expend from physical activity from your food calories/energy intake.
Social Security Benefits For People With Disabilities
The Social Security and Supplemental Security Income disability programs are the largest of several Federal programs that provide assistance to people with disabilities. While these two programs are different in many ways, both are administered by the Social Security Administration and only individuals who have a disability and meet medical criteria may qualify for benefits under either program.

 

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